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Latest news

Gary and Louise Redfern at the completion of the challenge

70k in May in Memory of Gary Redfern

8 September 2021

In December 2020 my Dad, Gary, was diagnosed with Malignant Pleural Mesothelioma. We had never heard of thistype of cancer until the day he was diagnosed.  It takes many years to develop following the inhalation of asbestos fibres. There is no known cure and the main treatments are to manage pain and hopefully prolong life. …

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Coping with a life-changing diagnosis and setting your own goals

6 September 2021

Writing on mesotheliomahelp.org, nurse specialist Lisa Hyde-Barrett reminds us that being diagnosed with an asbestos related disease is life changing. Patients handle this differently. Everyone is unique and so there is no right or wrong way. She says, ‘We must allow ourselves or our family members to feel their fear, or anger, or whatever emotion…

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Coping with the stress caused by asbestos

19 August 2021

A recurrent theme when we first speak to new service users is stress. The diagnosis often comes as a shock. People are frequently stunned to realise that they have been exposed to asbestos or that it has caused them harm, often many years afterwards. Once the news has sunk in, there is then the everyday…

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You can’t rely on the internet to tell you the facts about mesothelioma

18 August 2021

It may seem strange for a website to tell its readers that you can’t rely on the internet to tell you the facts about mesothelioma. However, a recent survey in the USA found that one third of the websites and blogs which talk about mesothelioma are providing misleading advice. Another third are providing advice that…

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Is this Good News?

16 August 2021

The UK Forum of Asbestos Victims’ Support Groups has been informed that a special payment will now be made to claimants with asbestosis and pleural thickening who missed out on some of their government compensation. This happened because of the suspension of medical assessments after the start of the Covid-19 pandemic. A number of MPs…

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One of our service users has been waiting more than14 months for his claim to be assessed

15 July 2021

In May members of the All Party Parliament Group on Asbestos met Justin Tomlinson, the minister of state for disabled people, with some of his team. The Asbestos Group raised the issue of how Covid-19 affects patients with pleural thickening and asbestosis. Most have been waiting for many months before their claims for benefit and…

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If you have asbestosis, did you work in the car industry?

12 July 2021

People often wonder when they were exposed to asbestos at work. A diagnosis of asbestosis or pleural thickening is a sure sign that someone has worked hands-on with asbestos, but sometimes people are left puzzling about when this might have been. This is because there were a lot of products containing hidden asbestos. Worse still,…

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If you missed Action Mesothelioma Day it’s never too late to get involved!

7 July 2021

Our On-line ActionMeso Day meeting We held an informal meeting where people shared stories about how mesothelioma had affected their lives. Someone mentioned a link to the original World in Action investigation into the activities of Cape Asbestos in their Acre Mill at Hebden Bridge. This was a landmark in getting the damage caused by…

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My wife, Lyn, was exposed to asbestos in school

2 July 2021

On Action Meso Day, Roy from Worcestershire shares the story of his wife Lyn, who worked in a school laboratory for 19 years, where she was exposed to asbestos. He makes a powerful plea for ZeroAsbestos in schools. A report published today by JUAC, the Join Union Asbestos Committee, suggests that asbestos in schools is…

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Mesothelioma stopped my brother from caring for his wife and riding his beloved motorbikes

1 July 2021

Rob Harper from Birmingham shares the story of his brother Chris, who was a plumberin Lichfield. The first effects of mesothelioma came from a shortness of breath. Although 79 years old Chris had been active all of his life. He played golf and cycled regularly as well as dismantling, repairing and riding his beloved veteran…

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