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Latest news

Coming to terms with uncertainty

7 February 2022

Benjamin Franklin, one of the architects of the America constitution, wrote in a letter to a friend, “In this world nothing can be said to be certain, except death and taxes.” It wasn’t an original idea. He borrowed this joke from the forgotten English playwright Christopher Bullock. But he made it famous. All of us…

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Dogged research by his solicitor leads to a just and fair settlement 50 years after Mr Lovell was exposed to lethal asbestos

26 January 2022

One of our service users, who believes he was exposed to asbestos for just two weeks in Devon in the mid-1960s, has secured compensation thanks to a forensic investigation to trace the company he believed was responsible. Brian was cutting up and nailing asbestos sheets Brian Lovell was diagnosed with mesothelioma more than 50 years…

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Rob's band oranised a fundraising concert for ASCE before Christas and so far has raised £2,500 for our work. Rob is thirs from the right, and is wearing a red waistcoat.

A personal view of mesothelioma by Rob Harper

5 January 2022

It seems many years ago now that I was asked by Doug Jewell, who was then the manager of Asbestos Support Central England (ASCE)), if the Clarion Choir would sing for Action Mesothelioma Day. Clarion have long been prepared to support and raise awareness of issues that affect working people and their families so they…

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Making the most of the holidays when you have an asbestos related disease

21 December 2021

Christmas is often seen as a special time for renewing contact with family and friends. This is when we create memories that we’ll cherish for months and sometimes years to come. But for people facing health challenges it can be a difficult time. Lisa Hyde-Barrett from the American organisation Mesothelioma Help says, “When your world…

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Buying presents for people with asbestos related diseases

10 December 2021

At this time of year you will find seasonal blogs telling you what to buy, and not to buy, for friends and loved ones who have an asbestos related disease. We’ve read them for you, so you don’t have to! Here are some suggestions. Tempting treats Sometimes people lose their appetite, or their tastebuds change,…

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An asbestos register for a school is no use when people forget to look at it!

9 December 2021

The government, and some non-governmental organisations, argue that it is safe to leave asbestos in schools and other public buildings, so long as there is a register of where the asbestos has been found. A case, brought to court by the Health and Safety Executive, shows this policy does not work. The school did have…

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Your diagnosis is the start of a journey

6 December 2021

Being diagnosed with an asbestos related disease is likely to change your perspective on life. Things that used to matter may no longer seem so important. The relationships and everyday things you took for granted may now take on new value. Understanding what your body needs You will find out what really makes you tick.…

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The HSE’s latest estimates of people being killed by asbestos

22 November 2021

The Health and Safety Executive has just reported its latest estimates of people dying from exposure to asbestos while they were at work.  Their estimates are based on what it said on people’s death certificates. They calculate that in 2019-20 about 12,000 people died from injuries to their lungs caused at work. 4,800 died from…

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MPs’ inquiry into the management of asbestos

17 November 2021

MPs on the Work and Pensions Committee have launched an inquiry into how asbestos is managed in the workplace. We have submitted written evidence to the inquiry. The Asbestos Victims Support Groups’ Forum will be giving live evidence at one of the committee’s hearings. Who is at risk? Traditionally the people deemed to be at…

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NICE offers new hope for patients with asbestosis

11 November 2021

For the first time, patients and their doctors will no longer need to choose between trying a new medicine which has the potential to extend their life and the alternative of claiming Industrial Injuries Disablement Benefit and a lump sum from the Workers’ Compensation Scheme. Drugs which slow the progression of pulmonary fibrosis were previously …

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