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A personal view of mesothelioma by Rob Harper
It seems many years ago now that I was asked by Doug Jewell, who was then the manager of Asbestos Support Central England (ASCE)), if the Clarion Choir would sing for Action Mesothelioma Day. Clarion have long been prepared to support and raise awareness of issues that affect working people and their families so they…
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Making the most of the holidays when you have an asbestos related disease
Christmas is often seen as a special time for renewing contact with family and friends. This is when we create memories that we’ll cherish for months and sometimes years to come. But for people facing health challenges it can be a difficult time. Lisa Hyde-Barrett from the American organisation Mesothelioma Help says, “When your world…
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Buying presents for people with asbestos related diseases
At this time of year you will find seasonal blogs telling you what to buy, and not to buy, for friends and loved ones who have an asbestos related disease. We’ve read them for you, so you don’t have to! Here are some suggestions. Tempting treats Sometimes people lose their appetite, or their tastebuds change,…
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An asbestos register for a school is no use when people forget to look at it!
The government, and some non-governmental organisations, argue that it is safe to leave asbestos in schools and other public buildings, so long as there is a register of where the asbestos has been found. A case, brought to court by the Health and Safety Executive, shows this policy does not work. The school did have…
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Your diagnosis is the start of a journey
Being diagnosed with an asbestos related disease is likely to change your perspective on life. Things that used to matter may no longer seem so important. The relationships and everyday things you took for granted may now take on new value. Understanding what your body needs You will find out what really makes you tick.…
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The HSE’s latest estimates of people being killed by asbestos
The Health and Safety Executive has just reported its latest estimates of people dying from exposure to asbestos while they were at work. Their estimates are based on what it said on people’s death certificates. They calculate that in 2019-20 about 12,000 people died from injuries to their lungs caused at work. 4,800 died from…
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MPs’ inquiry into the management of asbestos
MPs on the Work and Pensions Committee have launched an inquiry into how asbestos is managed in the workplace. We have submitted written evidence to the inquiry. The Asbestos Victims Support Groups’ Forum will be giving live evidence at one of the committee’s hearings. Who is at risk? Traditionally the people deemed to be at…
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NICE offers new hope for patients with asbestosis
For the first time, patients and their doctors will no longer need to choose between trying a new medicine which has the potential to extend their life and the alternative of claiming Industrial Injuries Disablement Benefit and a lump sum from the Workers’ Compensation Scheme. Drugs which slow the progression of pulmonary fibrosis were previously …
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A Night of Rock ‘n’ Roll Music
Join us for an evening of great music to be provided by members of the popular bands from the 1950s and 1960s including: THE BRUMBEATS, THE CUTAWAYS, THE MODERNAIRES, THE BEACHCOMBERS, THE APPLEJACKS Local writer and historian Laurie Hornsby will be there to introduce the bands and sing a few of his songs about Birmingham…
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Roy writes about the help he and his wife Lyn received from Asbestos Support Central England
Asbestos Support Central England (ASCE) helped my wife Lyn and I as we were trying to come to terms with the life-devastating diagnosis of Mesothelioma, an asbestos related cancer. At that point we were both less than rational. It was impossible for us to see the wood for the trees. Getting us the help we…
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