surviving with an asbestos related disease
Make an ActionMeso Board
If you are joining us for our regional Action Meso Day event at 11 o’clock tomorrow, or joining the national event at 12.30, #ActionMeso would like you to make an ACTION MESO BOARD. To get an invite please email info@asbestossupportce.org for the West Midlands event at 11 and go to https://actionmeso.org/amd21/ for your invite to…
Read MoreMarian’s story: the impact of mesothelioma on my mental health
Marian, a former social worker who lives in Birmingham, shares her thoughts and feelings about being diagnosed with mesothelioma. In October last year my life changed. A brief telephone call, from one of the medical registrars from the Hospital where I had undergone investigation, told me that I had a rare form of cancer and there was…
Read MoreLearning about Mesothelioma wasn’t what I meant when I decided to learn something new
Retired West Midlands teacher Bev found herself learning new lessons when she was diagnosed with mesothelioma My professional life was spent teaching. Three decades to be exact. On retiring, my aim was to become the pupil. Nothing highbrow; tips on how to improve my golf swing and some cultural toe-dipping in far flung places. There was little time…
Read MoreQuality of life is all important
Researchers in Australia have confirmed what we probably already knew. Quality of life is all important. When patients have an illness like mesothelioma it can also help them to live for longer. Previous studies had already shown that people survive for longer, on average, when they receive good palliative care or symptom control. This new…
Read MoreHow mesothelioma can affect your emotions
A new study by researchers at the University of Sheffield looks at the way mesothelioma can affect your emotional well-being. By ’emotions’ the researchers mean feelings like ‘loss, grief, anxiety and isolation’. They studied patient records over a 40 year period. Why is mesothelioma different from other cancers? Any cancer diagnosis can affect people in…
Read MoreHow to talk to children about your asbestos related disease
Adults sometimes try to avoid talking to one another about painful subjects such as illness, pain and loss. But young children are not afraid to ask questions and they can be very direct. It’s not unusual to be asked, ‘Why are you poorly, Granny?’ or ‘Are you going to die, Grandad?’ You can help them…
Read MoreA mesothelioma patient explains why he’s glad he sought legal advice
It was the 11th August 2020 and I was leaving my local hospital with a diagnosis of Mesothelioma! The following few days were very challenging really as my wife and I had to begin to come to terms with what the diagnosis meant. We had to inform family and friends, and discuss treatment options, as well…
Read MoreWhy palliative care can help
It can be a shock, and very disappointing, when the oncologist says that – in their opinion – the best available treatment is palliative care. Deciding the best treatment for a patient is always a balance. The patient and their doctor have to weigh the likely benefits and the likely side effects. These might make…
Read MoreSurviving with mesothelioma in 2020
Each year the US charity Mesothelioma.com publishes its list of the twenty most inspiring blogs about asbetsos and mesothelioma. Alongside blog posts from 2020 about promising new treatments and hidden dangers from asbestos was the story of one man who survivied with mesothelioma for three years until his death in May. He was interviewed for…
Read More