Sometimes people do beat the odds

In a recent post we explained how doctors work out their patients’ life expectancy after they have been diagnosed with an asbestos related disease. There is no crystal ball. An estimate of someone’s life expectancy is based on the average time that people survive with a particular disease. It’s also affected by any other health…

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Coping with a life-changing diagnosis and setting your own goals

Writing on mesotheliomahelp.org, nurse specialist Lisa Hyde-Barrett reminds us that being diagnosed with an asbestos related disease is life changing. Patients handle this differently. Everyone is unique and so there is no right or wrong way. She says, ‘We must allow ourselves or our family members to feel their fear, or anger, or whatever emotion…

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Make an ActionMeso Board

If you are joining us for our regional Action Meso Day event at 11 o’clock tomorrow, or joining the national event at 12.30, #ActionMeso would like you to make an ACTION MESO BOARD. To get an invite please email info@asbestossupportce.org for the West Midlands event at 11 and go to https://actionmeso.org/amd21/ for your invite to…

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Marian’s story: the impact of mesothelioma on my mental health

Marian, a former social worker who lives in Birmingham, shares her thoughts and feelings about being diagnosed with mesothelioma. In October last year my life changed. A brief telephone call, from one of the medical registrars from the Hospital where I had undergone investigation, told me that I had a rare form of cancer and there was…

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Quality of life is all important

Researchers in Australia have confirmed what we probably already knew. Quality of life is all important. When patients have an illness like mesothelioma it can also help them to live for longer. Previous studies had already shown that people survive for longer, on average, when they receive good palliative care or symptom control. This new…

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How mesothelioma can affect your emotions

A new study by researchers at the University of Sheffield looks at the way mesothelioma can affect your emotional well-being. By ’emotions’ the researchers mean feelings like ‘loss, grief, anxiety and isolation’. They studied patient records over a 40 year period. Why is mesothelioma different from other cancers? Any cancer diagnosis can affect people in…

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How to talk to children about your asbestos related disease

Adults sometimes try to avoid talking to one another about painful subjects such as illness, pain and loss. But young children are not afraid to ask questions and they can be very direct. It’s not unusual to be asked, ‘Why are you poorly, Granny?’ or ‘Are you going to die, Grandad?’ You can help them…

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