surviving with an asbestos related disease
The benefits of hospice care are not just for the end of life
When we hear the word ‘hospice’ it can conjure up difficult feelings and thoughts about death. The very mention of the word can be upsetting. People often think of hospices as the end of the road. But hospices are not necessarily what we imagine. A hospice provides a type of care. It’s not just a…
Read MoreThank goodness Asbestos Support Central England exists and continues to help people with asbestos related diseases!
Maureen Chetwyn writes: My husband Bob, (Pictured during his treatment) was diagnosed with mesothelioma on the 30th of July 2014. I consider myself very lucky to have shared a further two-and-half years with him, until the the 11th of December 2016. During this period we enjoyed several holidays together. (We went whale watching in Canada.)…
Read MorePatients with incurable asbestos-related cancer have seen processing times for benefits and government compensation double
Mesothelioma patients have seen an increase in processing times for applications from 24 days in 2022 to 48 days in 2023 New research from Mesothelioma UK, the national asbestos-related cancer charity, has confirmed that times for processing benefits and government compensation claims for mesothelioma patients have doubled within a year. This is also our experience…
Read MoreLooking out for the symptoms of mesothelioma
My name is Emily-Jane Scandrett. I’d like to raise more awareness about the symptoms people experience leading up to their diagnosis. Not just awareness for the general public but for health care professionals too… as my diagnosis took a horrid 17 months! What to look out for Below are the symptoms listed on the MesotheliomaUK…
Read MoreThe Broken Ones take on the Hallow 12 Parish Challenge
My name is Sue Farrall. On September the 2nd 2022 I was given the devastating news that I have mesothelioma. The story so far Mesothelioma is an incurable form of cancer caused by exposure to asbestos. I was 56 years of age with a 25 year work history in community pharmacy. I did not fit…
Read MorePick up a penguin
One of our oldest service users, Mr Kenneth Dorsett, proves that there’s life after a diagnosis of mesothelioma. He met a penguin while staying at his local hospice. And he even got to pick the penguin up for this photo.
Read MoreHelen Bone’s Mesothelioma Blog
You can read Helen’s blog here. She calls her blog, ‘It is what it is’. If you’re impressed, why not try creating your own blog for family, friends and other people who have an asbestos related disease? Spread the word about the risks from asbestos.
Read More10 ways to help you relax when you have an asbestos related disease
Living with an asbestos related disease is stressful at the best of times. Relaxing activities can help us feel better physically, mentally and spiritually. In a new article Nurse Dana Nolan reminds us that they can also help us to improve our immune function and reduce inflammation and digestive problems [1]. The key to finding…
Read MoreAn interview with Mavis Nye
Mavis Nye has lived with mesothelioma for 13 years. Since her diagnosis she has been raising funds for research into mesothelioma and treatments for it. She also campaigns to raise awareness about the dangers of asbestos. Mavis believes it is never safe to leave asbestos in place, especially in schools. She would like to see…
Read MoreMy journey with mesothelioma
I first went to my doctors’ in October 2018. I was told that my breathlessness on walking uphill was normal for my age. But in February 2019 an x-ray revealed fluid on my left lung. Three months later I had the fluid removed in the Royal Stoke Hospital. A biopsy confirmed my diagnosis of mesothelioma.…
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