West Midlands Mesothelioma Support Group

Supporting hands

We run a Mesothelioma Support Group jointly with Sophie Phillips, our regional MesotheliomaUK nurse specialist. The meetings now take place face-to-face at the offices of Irwin Mitchell Solicitors in Birmingham. This arrangement will continue after Christmas. You can join in on-line if you prefer. Just let us know. Carers’ Support Group There will also be…

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What the focus group said about pleural thickening and asbestosis

Birmingham chest clinic

Feedback from the regional meeting for people with pleural thickening and asbestosis  Patients feel their questions, about how their disease might progress, are often left unanswered. Patients would like to see more research into whether or not there is a significant risk that people with other asbestos related diseases will go on to develop mesothelioma.…

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Coughs in Mesothelioma 

Cough (2)

Kate Slaven, the Mesothelioma Nurse based at Papworth Hospital in Cambridge, is conducting a study on Cough in Mesothelioma. Kate is looking for patients or carers to help her with this. To volunteer you have to be a patient yourself, or someone who has cared for a patient, who is age 18 or above has…

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Open Letter to Ran Oren, Joint CEO of Altrad

Altrad demo (2)

On 26 October the Forum of UK Asbestos Victims’ Support Groups sent the following open letter to Mr Ran Oren, the Joint CEO of Cape’s parent company Altrad. He is also the sole director of Cape Intermediate Holdings. It was addressed to his office at 125, Rue du Mas de Carbonnier, 34000 Montpellier in France.…

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‘Cape Must Pay!’ Demo Goes Ahead in Pouring Rain

Altrad demo

Despite torrential rain intrepid protestors gathered outside the offices of Altrad, Cape’s parent company, in Warrington on Friday 30 September. Some of them are pictured here.   £10 million would be a good start Neil Bishop, the manager of Asbestos Support Central England, says, ‘We are asking Cape to acknowledge the great harm that it…

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It’s time to mobilise aginst Cape

Caped heroes

The Forum of Asbestos Victims’ Support Groups is calling patients, carers, friends and relatives to mobilise for a day of action. We intend to demonstrate outside the head offices of Cape International Holdings. Why we are mobilising against Cape This is the company which manufactured asbestos insulation board. It recently spent a fortune trying to…

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Ipi/Nivo Immunotherpay Approved by NICE

Immunotherapy

A year on from its first committee meeting to consider this, NICE has finally approved immunotherapy combining Nivolumab and Ipilimumab for the first line treatment of mesothelioma by the NHS. This treatment is commonly known as Ipi/Nivo. NICE is the National Institute for Health and Care Excellence. What’s the best treatment? Patients often regard immunotherapy…

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Ask your MP to support Early Day Motion 93

Big ben

Please write to your MP about Early Day Motion 93. This asks Cape Holdings PLC to make a £10 million donation towards mesothelioma research. If you wish, you can use the following template. Remember to tell your MP how you have been affected by an asbestos related disease. Template for writing to your MP Dear Insert…

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Fatalities Caused By Work Related Accidents are Completely Over-shadowed by Fatalities from Work Related Asbestos Diseases

Traffic light

The news media, (TV, Radio, Newspapers and News websites), regularly report work-related accidents, especially those which end in a fatality. However, the number of fatalities at work caused by accidents is very small compared to the number of fatalities caused by exposure to asbestos at work. Just over 200 people died least year in work…

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