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Latest news

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Alarming report finds asbestos is not being managed safely

21 December 2022

The British Occupational Hygiene Society (BOHS) and the professional body for asbestos scientists the Faculty of Asbestos Assessment and Management (FAAM) are calling are calling for an urgent review of how asbestos in buildings is managed. Alarming new research This follows new research published jointly by the National Organisation of Asbestos Consultants (NORAC) and the…

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Christmas and New Year Opening Hours

20 December 2022

We are open as usual this week. In the week between Christmas and New Year the helpline will be staffed during office hours on Wednesday 28, Thursday 29 and Friday 30 December. We will open as usual in the New Year from Tuesday 3 January. A Happy Christmas and a Peaceful New Year to Everyone.…

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West Midlands Mesothelioma Support Group

19 December 2022

We run a Mesothelioma Support Group jointly with Sophie Phillips, our regional MesotheliomaUK nurse specialist. The meetings now take place face-to-face at the offices of Irwin Mitchell Solicitors in Birmingham. This arrangement will continue after Christmas. You can join in on-line if you prefer. Just let us know. Carers’ Support Group There will also be…

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The Butterfly Group Christmas Lunch

16 December 2022

If this image looks inviting, and you are someone from our area who has lost a loved one to an asbestos related disease, you might like to join the Butterfly Group for their annual Christmas lunch. It will take place on Monday 16 January at Browns. This in St Martin’s Square, in the Bullring, opposite…

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What the focus group said about pleural thickening and asbestosis

7 December 2022

Feedback from the regional meeting for people with pleural thickening and asbestosis  Patients feel their questions, about how their disease might progress, are often left unanswered. Patients would like to see more research into whether or not there is a significant risk that people with other asbestos related diseases will go on to develop mesothelioma.…

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Coughs in Mesothelioma 

5 December 2022

Kate Slaven, the Mesothelioma Nurse based at Papworth Hospital in Cambridge, is conducting a study on Cough in Mesothelioma. Kate is looking for patients or carers to help her with this. To volunteer you have to be a patient yourself, or someone who has cared for a patient, who is age 18 or above has…

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Community Fund Award

29 November 2022

We should like to say a big thank you for a grant of £4,600 grant from The Community Fund, which is part of the National Lottery. This will enable us to train Kathryn, the newest member of our team, to become a part-time adviser. It brings the number of part-time advisers on our team to…

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The number of women with asbestos related diseases is growing

28 November 2022

After asbestos was banned in the UK in 1999 it was assumed that the number of people with an asbestos related disease would reach a peak and then start to decline. This still isn’t happening. One reason is that asbestos related diseases mostly affect older people. Life expectancy has increased by six years since 1990.…

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Busting the myths about palliative care

28 October 2022

The Mesothelioma UK Research Centre at the University of Sheffield has produced an animation aimed at people with mesothelioma and their families. It will also be of interest to anyone who is becoming progressively disabled by an asbestos related disease. It looks at common misconceptions about palliative care.  In particular, it aims to dispel the…

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Open Letter to Ran Oren, Joint CEO of Altrad

26 October 2022

On 26 October the Forum of UK Asbestos Victims’ Support Groups sent the following open letter to Mr Ran Oren, the Joint CEO of Cape’s parent company Altrad. He is also the sole director of Cape Intermediate Holdings. It was addressed to his office at 125, Rue du Mas de Carbonnier, 34000 Montpellier in France.…

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