How donations are helping us to expand our work

The move to our new offices at The Warehouse was made possible by the generosity of one of our service users, Chris Harper. It brings to an end years of uncertainty.  A donation in memory of Mr William Benton has made it possible for us to introduce the new case management system. A similar sized…

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A word about the Butterfly Group

Mesothelioma is a word we had never heard of before, but it changed our lives completely. We both lost our husbands to this awful disease in 2014. Sheila lives in the apartment above me and lost her husband eight months before my husband died. We got chatting at a few of the social gatherings where…

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Coming to terms with uncertainty

Benjamin Franklin, one of the architects of the America constitution, wrote in a letter to a friend, “In this world nothing can be said to be certain, except death and taxes.” It wasn’t an original idea. He borrowed this joke from the forgotten English playwright Christopher Bullock. But he made it famous. All of us…

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A personal view of mesothelioma by Rob Harper

Rob's band oranised a fundraising concert for ASCE before Christas and so far has raised £2,500 for our work. Rob is thirs from the right, and is wearing a red waistcoat.

It seems many years ago now that I was asked by Doug Jewell, who was then the manager of Asbestos Support Central England (ASCE)), if the Clarion Choir would sing for Action Mesothelioma Day. Clarion have long been prepared to support and raise awareness of issues that affect working people and their families so they…

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Buying presents for people with asbestos related diseases

At this time of year you will find seasonal blogs telling you what to buy, and not to buy, for friends and loved ones who have an asbestos related disease. We’ve read them for you, so you don’t have to! Here are some suggestions. Tempting treats Sometimes people lose their appetite, or their tastebuds change,…

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A Night of Rock ‘n’ Roll Music

Join us for an evening of great music to be provided by  members of the popular bands from the 1950s and 1960s including: THE BRUMBEATS, THE CUTAWAYS, THE MODERNAIRES, THE BEACHCOMBERS, THE APPLEJACKS Local writer and historian Laurie Hornsby will be there to introduce the bands and sing a few of his songs about Birmingham…

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This service needs to be publicised more!

Lesley Nash writes, ‘Your service needs to be publicised more so that you can help people earlier on. My parents and I were not fully aware of the support that was available. Your service has been a blessing It has been a real blessing knowing that there is help out there and that you are…

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Our Face-to-Face Support Resumes After the Pandemic

Members of the Butterfly Group enjoying lunch together

The Butterfly Group is our support group for people who have been left bereaved by an asbestos related disease. Some of its members met for lunch together yesterday. This was the first time the Group had met face-to-face indoors for more than 18 months. The Group is pictured renewing old acquaintances at Marco Pierre White’s…

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