Looking out for the symptoms of mesothelioma

My name is Emily-Jane Scandrett. I’d like to raise more awareness about the symptoms people experience leading up to their diagnosis.  Not just awareness for the general public but for health care professionals too… as my diagnosis took a horrid 17 months! What to look out for Below are the symptoms listed on the MesotheliomaUK…

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10 ways to help you relax when you have an asbestos related disease

Woodland path by water with a footbridge across it

Living with an asbestos related disease is stressful at the best of times. Relaxing activities can help us feel better physically, mentally and spiritually. In a new article Nurse Dana Nolan reminds us that they can also help us to improve our immune function and reduce inflammation and digestive problems [1]. The key to finding…

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Watch Dr Xand Talking to People About Mesothelioma

People living with mesothelioma report that this is an excellent programme from the BBC. It features Liz Darleston, the CEO of Mesothelioma UK, as well as two patients who talk about their condition. They explain how they were exposed to asbestos. Something to share with your friends. The link is here.  

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Surviving with Mesothelioma

A new study published this month in the Journal of Surgical Oncology looked at survival rates for people with malignant pleural mesothelioma. It is important to note that the study covers the period from 1992 to 2015, before treatment with immunotherapy started to become available. It also looked at patients in the US, whose access…

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Introducing “Your Health Companion”

Catherine Fensom, Integration Director, Your Health Companion My name is Catherine Fensom. I am a senior oncology nurse, with a wealth of experience delivering first-class cancer services. Having qualified as a nurse in 1997, I have held several different oncology roles working for both East Cheshire NHS Trust and The Christie Foundation NHS Trust. Through…

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New Carers and Friends’ Support Group

We are pleased to announce our new Mesothelioma Support Group for Carers, relatives and friends. This will start on Monday 23 January. It will meet from 11 – 12.30 in Birmingham. Previously we have run some on-line support but this is our first venture into face-to-face meetings. Please note, the new group is ONLY for carers,/relatives…

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Mesothelioma Support Group January 2023

The Central England Mesothelioma Support Group, which we run jointly with Mesothelioma UK, will meet next on Monday 9 January 2023  from  11 – 12.30. If you are a patient or carer you can join us face to face at the fabulously warm offices of Irwin Mitchell. You can also join us virtually via Microsoft…

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What the focus group said about pleural thickening and asbestosis

Feedback from the regional meeting for people with pleural thickening and asbestosis  Patients feel their questions, about how their disease might progress, are often left unanswered. Patients would like to see more research into whether or not there is a significant risk that people with other asbestos related diseases will go on to develop mesothelioma.…

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Coughs in Mesothelioma 

Kate Slaven, the Mesothelioma Nurse based at Papworth Hospital in Cambridge, is conducting a study on Cough in Mesothelioma. Kate is looking for patients or carers to help her with this. To volunteer you have to be a patient yourself, or someone who has cared for a patient, who is age 18 or above has…

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Busting the myths about palliative care

The Mesothelioma UK Research Centre at the University of Sheffield has produced an animation aimed at people with mesothelioma and their families. It will also be of interest to anyone who is becoming progressively disabled by an asbestos related disease. It looks at common misconceptions about palliative care.  In particular, it aims to dispel the…

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