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Latest news
Ian Terry finds that a timely settlement of his civil claim gives him new treatment options
Tuesday the 24th of September was a very significant day for me. Over many months my legal team had pressed the defendants in my case for a settlement. On the 24th of September they finally made an offer at the eleventh hour. The most important outcome was that I received a guarantee of unlimited cover…
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A shout out for the National Lottery players who helped us
We are delighted to share that we have received #NationalLottery funding from @TNLComFund for our project! Thank you to National Lottery players for helping #MakeAmazingHappen.
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Sophie Phillips has retired from MesoUK
Sophie Phillips has retired after almost five years as Mesothelioma UK’s nurse specialist for the West Midlands. Members of our Mesothelioma Support Group said an emotional farewell to her at their September meeting. She not only helped to organise and run the group but also acted as a specialist point of contact for mesothelioma patients…
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Exposing asbestos in cosmetics and talc
Hannah’s story Hannah Fletcher was diagnosed with peritoneal mesothelioma at the age of 41. This is a cancer caused by asbestos exposure. Her story can be heard in the BBC Radio4 podcast called “Talc Tales” available on BBC Sounds, Spotify and other platforms. She instructed Harminder Bains from Leigh Day to advise her on bringing…
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What it’s like on a drug trial
We find that our service users are always interested to hear about new drug trials and what happens if you join one. Here Ian Terry (pictured) writes about his experiences: 19 months after a pleurectomy operation I still have no symptoms, but a recent scan revealed some regrowth of my mesothelioma. I was offered the…
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Sue and Emily-Jane did it! …with a little help from their friends.
Sue Farrell and Emily-Jane Scandrett (on the left), both diagnosed with mesothelioma, have successfully completed the Hallows 12 Parish Challenge. This was a marathon walk across the Worcestershire countryside, which included a steep climb and lots of rain and mud. They were supported by friends and colleagues from our Mesothelioma Support Group. They came to…
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A big thank you to players of the National Lottery!
We’re proud to be part of a family of fantastic organisations across the UK that are making communities better places to be with the help of people who play the National Lottery. In our case the community we serve is region-wide. It brings together all the people with asbestos related diseases whom we help, support…
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A big thank you to the Garfield Weston Foundation
We are delighted to announce that the Weston Family Trustees have, after careful consideration, offered us a grant of £15,000. Thank you very much!
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Our accounts summarised in three simple charts
The three charts below show that our income in 2023 to 2024 was less than the previous year, even before inflation is taken into account the money we spent helping our beneficiaries went up slightly but, because we were careful, our reserves – the money we keep for a rainy day – also went up.…
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Action Mesothelioma Day gets everyone in a flutter
Sixty people attended our Action Mesothelioma Day event at the Church in Carrs Lane, Birmingham. The picture shows the Act of Remembrance at the start of the meeting. We commemorated the more than 5,500 people who are killed each year by asbestos related diseases. At least 225 of them come from our region. We also…
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