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A personal view of mesothelioma by Rob Harper
It seems many years ago now that I was asked by Doug Jewell, who was then the manager of Asbestos Support Central England (ASCE)), if the Clarion Choir would sing for Action Mesothelioma Day. Clarion have long been prepared to support and raise awareness of issues that affect working people and their families so they…
Read MoreMaking the most of the holidays when you have an asbestos related disease
Christmas is often seen as a special time for renewing contact with family and friends. This is when we create memories that we’ll cherish for months and sometimes years to come. But for people facing health challenges it can be a difficult time. Lisa Hyde-Barrett from the American organisation Mesothelioma Help says, “When your world…
Read MoreCovid-19 Precautions: Why we are still cautious about making home visits
Researchers are only now burrowing down into the statistics to find out how Covid-19 affects different patients. New studies in Spain and the United States of America have added weight to what many people already suspected. Underlying health conditions such as asbestos related diseases do seem to increase the risks from catching Covid-19. How things…
Read More70k in May in Memory of Gary Redfern
In December 2020 my Dad, Gary, was diagnosed with Malignant Pleural Mesothelioma. We had never heard of thistype of cancer until the day he was diagnosed. It takes many years to develop following the inhalation of asbestos fibres. There is no known cure and the main treatments are to manage pain and hopefully prolong life. …
Read MoreOne of our service users has been waiting more than14 months for his claim to be assessed
In May members of the All Party Parliament Group on Asbestos met Justin Tomlinson, the minister of state for disabled people, with some of his team. The Asbestos Group raised the issue of how Covid-19 affects patients with pleural thickening and asbestosis. Most have been waiting for many months before their claims for benefit and…
Read MoreIf you missed Action Mesothelioma Day it’s never too late to get involved!
Our On-line ActionMeso Day meeting We held an informal meeting where people shared stories about how mesothelioma had affected their lives. Someone mentioned a link to the original World in Action investigation into the activities of Cape Asbestos in their Acre Mill at Hebden Bridge. This was a landmark in getting the damage caused by…
Read MoreMy wife, Lyn, was exposed to asbestos in school
On Action Meso Day, Roy from Worcestershire shares the story of his wife Lyn, who worked in a school laboratory for 19 years, where she was exposed to asbestos. He makes a powerful plea for ZeroAsbestos in schools. A report published today by JUAC, the Join Union Asbestos Committee, suggests that asbestos in schools is…
Read MoreMesothelioma stopped my brother from caring for his wife and riding his beloved motorbikes
Rob Harper from Birmingham shares the story of his brother Chris, who was a plumberin Lichfield. The first effects of mesothelioma came from a shortness of breath. Although 79 years old Chris had been active all of his life. He played golf and cycled regularly as well as dismantling, repairing and riding his beloved veteran…
Read MoreBob was my rock and mesothelioma took him away
Maureen from Nuneaton lost her husband to mesothelioma in 2016. She is a member of our Butterfly Group, which supports bereaved relatives and campaigns for the removal of asbestos. Bob had worked for a metal fabrication company and for Birmingham City Council. My husband Bob was diagnosed with mesothelioma in 2014, and I consider myself…
Read MoreNew guidance from the TUC for workers dealing with asbestos
The TUC has issued new guidance about what to do when you find asbestos in a building how you can avoid being exposed to hazardous asbestos dust how to claim compensation if you get ill after being exposed to asbestos We can also help you with practical help and support, and by filling in the…
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