My journey with mesothelioma and what I am learning from it

Helen journeying with mesothelioma

My name is Helen and I have mesothelioma – please don’t stop reading because this can affect every single one of us, and not enough is known about its symptoms, effects and prognosis.  Why not?  Is it because we can’t outlive it?  I wonder how many people are interested in those cancers that cannot be…

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Service user appears on ITV Central News

A colour TV

Martin Hillsom, one of our service users, appeared last night on a package about asbestos removal in the ITV Central News teatime broadcast. He featured alongside Harminder Bains from the law firm Leigh Day. The package starts 16 minutes into the programme. Photo by Nicolas J Leclercq on Unsplash

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Watch Dr Xand Talking to People About Mesothelioma

People living with mesothelioma report that this is an excellent programme from the BBC. It features Liz Darleston, the CEO of Mesothelioma UK, as well as two patients who talk about their condition. They explain how they were exposed to asbestos. Something to share with your friends. The link is here.  

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Don’t let the dust settle!

Did you think the danger from asbestos is a thing of the past? It isn’t. The importation, supply and use of asbestos was banned in 1999, but it might still be in any building built or renovated before 2000. This is particularly true of work done between the 1950s and the 1980s. It is estimated…

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HSE launches new campaign, ‘Asbestos & You’

The Health and Safety Executive (HSE) has launched a new campaign aimed at tradespeople, their managers and supervisors. The campaign material also contains useful information for homeowners, landlords and DIYers. The HSE says: Any job, any day of the week, can potentially release lethal asbestos fibres. It’s not like dust –  you can’t see, smell,…

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Helplines Awareness Day 2023

February the 23rd is Helplines Awareness Day 2023. We provide a helpline for people with asbestos related diseases and belong to the Helplines Partnership (@HelplinesUK), which produced this youtube video.

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The number of women with asbestos related diseases is growing

After asbestos was banned in the UK in 1999 it was assumed that the number of people with an asbestos related disease would reach a peak and then start to decline. This still isn’t happening. One reason is that asbestos related diseases mostly affect older people. Life expectancy has increased by six years since 1990.…

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