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What it’s like on a drug trial
We find that our service users are always interested to hear about new drug trials and what happens if you join one. Here Ian Terry (pictured) writes about his experiences: 19 months after a pleurectomy operation I still have no symptoms, but a recent scan revealed some regrowth of my mesothelioma. I was offered the…
Read MoreSue and Emily-Jane did it! …with a little help from their friends.
Sue Farrell and Emily-Jane Scandrett (on the left), both diagnosed with mesothelioma, have successfully completed the Hallows 12 Parish Challenge. This was a marathon walk across the Worcestershire countryside, which included a steep climb and lots of rain and mud. They were supported by friends and colleagues from our Mesothelioma Support Group. They came to…
Read MoreA big thank you to players of the National Lottery!
We’re proud to be part of a family of fantastic organisations across the UK that are making communities better places to be with the help of people who play the National Lottery. In our case the community we serve is region-wide. It brings together all the people with asbestos related diseases whom we help, support…
Read MoreA big thank you to the Garfield Weston Foundation
We are delighted to announce that the Weston Family Trustees have, after careful consideration, offered us a grant of £15,000. Thank you very much!
Read MoreSue and Emily-Jane talk about their diagnosis with mesothelioma on BBC Radio Hereford and Worcester
You can listen to two of our Support Group members, Emily Jane and Sue, talking about their diagnosis with mesothelioma on the Elliott Webb Show on BBC Radio Hereford & Worcester. The broadcast will be available for another 27 days. Elliott is shocked to learn how prevalent asbestos still is and how risky it can…
Read MoreAnother protest is planned outside Cape’s offices in Warrington
Mesothelioma is a terminal cancer caused by asbestos. A company called Cape was a leading manufacturer of asbestos products in the UK from the 1950s to the 1980s. Altrad is now Cape’s parent company, and purchased Cape in 2017. Our case against Cape The UK Forum of Asbestos Victims’ Support Groups (AVSGF), to which ASCE…
Read MoreJoin us on International Workers’ Memorial Day
An invitation to the annual commemoration of those who have died in our region from worked related injuries. The commemoration will be held at the workers’ memorial in the grounds of St Philip’s Cathedral, Birmingham on Friday 28 April at 12.30pm. Remember the dead. Fight for the living. photo by Christophe.Finot (CC BY-SA 3.0) modified
Read MoreConcessionary Travel on West Midlands Public Transport
If you live in the West Midlands conurbation and have an asbestos related disease you are probably entitled to concessionary travel on buses, trains and trams. The area covered by the concession is Birmingham Coventry Dudley Sandwell Solihull Walsall Wolverhampton It only takes 15 minutes to apply on line. If you have any difficulties with…
Read MoreJoin us for our live event on Action Mesothelioma Day 2023, Friday 7 July 1 till 4pm
This year we’re going live again for Action Mesothelioma Day. We’re organising a jam-packed event on the afternoon of Friday 7 July in the centre of Birmingham at The Priory Rooms on Bull Street. There is a tram stop right outside and it’s an easy walk from the New Street, Snow Street and Moor Street…
Read MoreForum reps and medics will meet Cape to discuss donation to research
Representatives from the UK Asbestos Support Groups’ Forum, along with internationally recognised medical professionals, are meeting with Cape to discuss our demand that Cape pay £10 million towards medical research. As a goodwill gesture the Forum has postponed its plans to ramp up our ‘Cape Must Pay’ campaign. Cape were one of the leading manufacturers…
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